Mara Botonis
marabotonis

Mara’s passion and life’s work has been to learn the best practices which capable caregivers (both professional and family member) use to find success, joy and hope in the face of this devastating disease and find a way to share that information with those who deal with dementia on a day-to-day basis. She is the 2015 Jefferson Award Recipient: Outstanding Public Service, and the 2015…

Mara’s passion and life’s work has been to learn the best practices which capable caregivers (both professional and family member) use to find success, joy and hope in the face of this devastating disease and find a way to share that information with those who deal with dementia on a day-to-day basis. She is the 2015 Jefferson Award Recipient: Outstanding Public Service, and the 2015 Jacqueline Kennedy Onassis Award Recipient: Outstanding Public Service on Behalf of and Throughout the United States. She continues to be an active speaker and advocate for those impacted by dementia worldwide. Learn more about her work at: http://www.whencaringtakescourage.com/

Best-selling author, “When Caring Takes Courage", available worldwide on http://www.amazon.com 2015 Recipient of the Jefferson Award for Outstanding Public Service 2015 Jacqueline Kennedy Onassis Medal Honoree-Outstanding Impact National Public Service Co-Chair National Dementia Action Alliance Utilization and Access Work Group, Project Lifesaver International Law Enforcement/First Responder-Alzheimer’s Trainer, Alzheimer’s Association Board Member-Southeast Florida Chapter, Curator of: http://www.caregivers.com, Co-Moderator USAgainst Alzheimer’s National Support Group, Contributing Writer for http://www.alz.live, http://www.alzheimersreadingroom.com, http://www.alzheimersnet.com, http://www.commonsensecaregiving.com and http://www.aplaceformom.com Keynote Speaker, Alzheimer’s Family Caregiver Advocate, Alzheimer’s Awareness Supporter.

After thirty years in healthcare, working throughout the United States in the senior housing industry, Mara's life and career trajectory was forever changed when a close family member was stricken with Alzheimer's. Her everyday work at the national level alongside families coping with the impact of Alzheimer’s and dementia, as well as countless medical and healthcare professionals specializing in these diseases, offered unparalleled opportunities to learn from their collective expertise. Mara has worked closely with both executive management and sales teams in the senior housing across the country providing analysis, training, coaching, and ongoing support in the establishment and innovation of effective person-centered care and customer programs. Mara's specific area of specialty revolves around support for persons and caregivers impacted by Alzheimer's, dementia and cognitive impairment.

She has spent time in hundreds of communities with thousands of families while working in over thirty states during her career in healthcare and has worked in sales and marketing in regional, divisional and national roles. This has given her a tremendous knowledge of the challenges faced every day while coping with the impact of Alzheimer's and dementia.

She has consulted for clients and had direct experience in all areas of the seniors housing business: Continuing Care Retirement Campus (CCRC), stand-alone (and combination) Independent/ Retirement Living (IL) Assisted Living (AL), Memory Care (MC), Skilled Nursing (SNF), as well as Home Health Care (HH), Hospice and Hospital/Acute care settings. Mara continues to be an in-demand speaker for healthcare professionals and highly requested trainer for family caregivers. Her extensive background and successful track record in collaborating with both family caregivers and healthcare professionals in all aspects of at-home and community-based Memory Care nationwide has provided the ideal foundation with which to learn from and replicate the successes thousands of caregivers experience each day in coping with dementia including Alzheimer’s.

Mara’s passion and life’s work has been to learn the best practices which capable caregivers (both professional and family member) use to find success, joy and hope in the face of this devastating disease and find a way to share that information with those who deal with dementia on a day-to-day basis. Her company, Biography Based Care®, offers educational tools, resources and training for both professional and family caregivers.

 

Contact her:

Website: http://www.whencaringtakescourage.com/

Email: biographybasedcare@yahoo.com

Buy the book:

Amazon: http://www.amazon.com/When-Caring-Takes-Courage-Compassionate/dp/1478730536/ref=tmm_pap_title_0?ie=UTF8&qid=1400634987&sr=8-1

Articles by Mara Botonis

Article: Entertainment

Actor Plays Alzheimer's Caregiver with Compassion

by MARA BOTONIS


As an actor, Daniel Roebuck's got one of those faces. The kind of face that registers instant familiarity and a sense of affinity, even if you are one of the few fans that can’t immediately place just exactly where you've seen him before. Roebuck was born in Bethlehem, Pennsylvania and graduated from…

Article: Inspiration

Looking for the Beauty below the Surface

by MARA BOTONIS


I am lucky enough to live near enough to the Atlantic ocean that each day as I look our window I see its waters touch the shore. Sometimes the tides come onshore with the tender caress of a lover, sometimes with all of the violence and energy of the winds that brought these waters from around the world…

Article: Caregiving

Maintaining Your Role When Others Oversee Direct Care

by MARA BOTONIS


The decision to arrange for others to participate in meeting your loved one’s daily care needs is never an easy one. By and large the most common concern I’ve heard from families who were considering facility placement, or the hiring of in-home primary caregivers, may surprise you. Often the primary…

Article: Books

Symptom Tracker

by MARA BOTONIS


Each person’s experience with Alzheimer’s or Dementia is unique to them. Symptoms may change frequently and progress differently with each person and can be affected by many factors. This tool was designed to help the family caregiver track the type and frequency of the symptoms your loved one is…

Article: Books

A Template for Creating Your Loved One’s Biography

by MARA BOTONIS


This Biography can help you capture all of the preferences that make your loved one unique and that you are now responsible for honoring and protecting because they can no longer do so. Doing things the way they always have, or prefer, can help increase cooperation, create positive outcomes and decrease…

Article: Books

Biography-Based care: how it can help you and your loved one

by MARA BOTONIS


Each person with the Alzheimer’s disease is unique. The way the disease progresses, the nature of their symptoms, the areas of strength and deficit, are all completely different at each stage of the disease and for each person. There are many resources out there that identify the stages of Alzheimer’s.…

Article: Family

Mara Botonis: the making of an advocate

by MARA BOTONIS


“It’s an honor and a privilege.” Those are the words I shared with my mother during a phone call when I learned that she and my step-dad were moving in with my grandparents and would help to care for my grandfather, who was just starting to show signs of Alzheimer’s. During that talk, several…

Article: Well-being

Thanksgiving Prayer for Caregivers

by MARA BOTONIS


Thank you for loving me enough to take care of me. Thank you for the times your meal is cold, because you make mine first. Thank you for the times you wake up at night to check that I am safely sleeping. Thank you for the times you worry about me, pray for me, want the best for me. Thank you for the…

Article: Planning

One benefit from U.S. Vet Affairs that offers real relief

by MARA BOTONIS


She had to look up where he was going on a map. She watched the news each night simultaneously hoping for and afraid of any updates on the war effort she might learn about. She breathlessly opened the mailbox each day praying for a letter from him and word that he was OK. She reassured their children…

Article: Happiness

9 comforting things a dementia carer dreams of

by MARA BOTONIS


"Don’t keep telling me about the latest miracle cure" among this great list of 9 ways to comfort caregivers: Think of it as a mantra, a poem, a serenity prayer. Send to your friends. They want to help ... they just don't know how. Everyone is babystepping in this growing silver tsunami. Even for those…

Article: Doctor

Doctors don’t know everything

by MARA BOTONIS


Unless you share everything. Waiting rooms in doctor’s offices across North America are filled with family caregivers who ran a marathon to get their loved one to the appointment. The cleaning, dressing, feeding; the coaxing into the car; making it on time, or at least not late enough that the office…

Article: Community

Memory People: Where Strangers Feel Like Family

by MARA BOTONIS


A daughter shares that her mother has to leave her current care community and she quickly needs to find an affordable alternative that is also decent and well-run. A woman reveals that she misses being intimate with her husband since he started having more pronounced symptoms of dementia. A husband…

Article: Money

Ease the cost of dementia: 8 go-to resources

by MARA BOTONIS


Eight essential financial resources and strategies to help you when the going gets rough: This informational series Financial Solutions, from my book When Caring Takes Courage, is designed to acquaint you with a few of the methods of paying for home or facility-based care. With healthcare costs continuing…